After two days in the hospital, which included intensive training in managing Christian's type 1 diabetes, the family returned
home.
"It was absolutely the scariest thing I've ever had to do in my life," Shahmardian says. "I was convinced I was going to leave the hospital and [accidentally] kill this kid."
"It was absolutely the scariest
thing I've ever had to do in my life. I was convinced I was going to leave
the hospital and [accidentally] kill this kid."
- Andrea Shahmardian - Mother of a diabetic son
An estimated 176,500 people under age 20 have diabetes in the United States. That's about one in every 500 or so children and young adults. With childhood obesity on the rise, physicians have seen an increase in type 2 diabetes in children, causing alarm and media attention. But of the two types of diabetes (type 1 and type 2), type 1, commonly known as juvenile diabetes, is still the most prevalent in children.
A recent study conducted at the University of Washington in Seattle and reported in the Archives of Pediatrics and Adolescent Medicine found that as many as 39,005 kids ages 12 to 19 have type 2 diabetes. And an astounding 2.7 million kids could be in danger of developing type 2 diabetes. Meanwhile, a report on drug therapy trends that followed millions of children nationwide from 2003 to 2005 found a 40-percent increase in insulin prescriptions, the type prescribed for people with type 1 diabetes.
Living with Diabetes One of the toughest aspects of diabetes for kids, according to doctors and parents, is that they have to test their blood sugar every few hours. Small, portable glucose meters requiring just a tiny blood sample are making this easier.
For kids taking insulin shots, there are self-injector pens to hide the needles.
There are also insulin "pumps," with a canula (small, flexible plastic hollow
needle attached to a tube) that stays in place under the skin for days at a
time. The canula is attached to a device that regulates and delivers the insulin,
allowing kids to adjust their dose without additional shots. New insulin created
in recent years works more efficiently, and is closer to the insulin that
the body would create on its own.
Another important development has been the recognition that kids with diabetes can still be kids, says Larry Deeb, M.D., president elect of medicine and science for the American Diabetes Association (ADA). "It's the understanding that if he wants to play football, he will. And if she wants to be a volleyball star, she can."
"Life is the same as for all children and families, but with more tasks, planning and attention to details," notes Margie Lawlor, the coordinator of pediatric research and education at the world-renowned Joslin Diabetes Center in Boston. Once a diabetic child and his family have learned about blood-sugar testing, proper eating, carb counting and medication, it's time to move on. "Your life has to get back to normal," Lawlor says. "It's just a new normal."
Type I vs. Type 2
-
The Difference - Both types of diabetes involve problems
with insulin, the hormone that allows glucose (blood sugar) to enter the body's
cells and be body produces little or no insulin. In type 2, the body produces
insulin, but a number of factors - including low activity level, poor diet
and being overweight - cause the body's fat and muscle cells to become insulin
resistant, blocking insulin from entering. Either way, because the glucose
is not being used as fuel, high levels build up in the bloodstream and cause
illness.
Larry Deeb, M.D., of the American Diabetes Association, believes research
will eventually show that the two types of diabetes are actually quite similar.
Studies have found indications of a genetic component that makes people susceptible
to type 2 diabetes, while there are also likely environmental and lifestyle
factors that "trigger" onset of Type 1.
The Effects - For kids with either form of diabetes, low blood sugar levels
- also called hypoglycemia - can result in headaches, shaking, sweating, fatigue,
weakness and hunger. In extreme cases, it can lead to a coma or even death.
Long-term complications are usually due to cell damage, and can include heart
disease and blockages of the major arteries of the legs, glaucoma or blindness,
kidney disease, nerve damage and foot and skin problems.
Diagnosis - Type 1 diabetes, primarily a genetic problem, is usually diagnosed
in childhood or adolescence. Type 2 is usually diagnosed in adulthood, though
incidence in children is increasing, due in large part to the childhood obesity
problem.
Treatment - Type 1 is treated with insulin injections. Type 2 is treated by
a combination of lifestyle changes - improved diet, increased physical activity,
and healthy weight maintenance - plus medications that might include insulin
- Christina Elston
For the Shahmardian family, this meant going ahead with Christian's plans
to enter an expeditionary junior high school, where the kids would spend lots
of time in the field on rafting and camping trips. Christian, now 16, says
that it took about four months to overcome his fear of needles and get used
to managing his diabetes.
"That was all I could think about when I was first diagnosed," he says. "I knew that it would involve shots, and that scared me a lot." His insulin pump, he says, makes life much easier.
Connecting With - and Educating - Others
While Christian's parents thought he had the flu when his diabetes first flared
up, Donna Levin thought her son, Josh, had a urinary tract infection. Josh
was 9 at the time, and had begun wetting the bed. His pediatrician sent him
to the lab for blood work. "They called us back and told us we had to head over to the hospital, and they were waiting for us," says the mother of two.
Not familiar with type 1 diabetes, and baffled as to how her young, thin son
could possibly be diabetic, Levin quit her night job and took a position at
Josh's school to be on hand for any medical needs he might have.
"When he was younger, it was really hard," she says. "I always made myself available to be there to keep an eye on him."
About three years ago, at 13, Josh started administering his own injections.
But his mom says it took some work to convince school administrators to allow
him to carry his supplies - a blood test kit, insulin pen and snacks - with
him, instead of storing them in the nurse's office.
Connecting with other parents
through message boards on the ADA Web site, and attending diabetes family camps,
have helped the Levins find support. They also attend a diabetes symposium
held yearly at Stanford University. But they still struggle with a lack of
understanding on the part of others - mostly with the assumption that diabetes
is always the result of giving children too many sweets or high-fat foods.
"You can't cause your child to develop type 1 diabetes," Levin says. "No, we did not overfeed our child sugar, junk food and soda to bring this on!"
Laura Plunkett, a psychologist and mother of two, put her family's story
on paper in hopes of helping others. Her son Danny, now 12, was diagnosed with
type 1 at age 7. Despite receiving excellent care at top hospitals, Danny's
blood sugar levels were under control, but consistently above those recommended
to prevent long-term complications. Danny's doctors were not as concerned,
telling her, "This is excellent control," Plunkett says.
But the education she initially received didn't focus on lifestyle changes
for kids with type 1. Plunkett started researching the issue and found information
on how moving toward more whole foods and complex carbs - found in whole grains
and vegetables - could help. She began re-vamping her family's lifestyle to
include a healthier diet and more physical activity. The changes have paid
off. The whole family is healthier, she says, and Danny's numbers are down.
Plunkett and her mother, newspaper columnist Linda Weltner, turned the story
of her family's adjustment and what Plunkett learned into a book, The Challenge
of Childhood Diabetes. Plunkett says she doesn't expect her family's way of
doing things will be an exact fit for other families, but she does want to
encourage parents to try to find their own way. "If you have the resources, just look around and find what works for you," she urges.
Headed Toward a Cure?
With knowledge about diabetes rapidly increasing, Deeb
holds out hope that even better treatments - and a cure - are on the way.
"When we first started, we were guessing in the dark," he says. "Now we're guessing in the dawn. I expect we'll be operating in the sunshine in 10 years."
Research efforts, such as the Search for Diabetes in Youth and the TODAY studies
(see Resources), are helping health experts better understand both types of
diabetes. On the horizon could be "smart" insulin pumps that automatically test blood sugar, glucose
meters that require no finger stick, and even cell transplantation to help kids with type 1 produce insulin again.
Meanwhile, kids living with diabetes are making the best of it.
"It really hasn't hurt my social life or my fun or anything," says Christian Shahmardian. "I do everything a 16-year-old boy without diabetes can do."
Christina Elston is the contributing health editor for United Parenting Publications.
Resources
Organizations
- American Diabetes Association - www.diabetes.org - Offers information on
nutrition and weight loss, diabetes research, treatment and prevention, plus
information specifically for parents, kids and schools.
- Children with Diabetes - www.childrenwithdiabetes.com - This privately run
site, recommended by the ADA, includes forums, chat rooms, news about research
and treatment, and the chance to post questions to healthcare professionals.
- Joslin Diabetes Center - 800-JOSLIN-1, www.joslin.org - A worldwide leader
in diabetes research and treatment. Juvenile Diabetes Research Foundation -
www.jdrf.org - JDRF funds and advocates for type 1 diabetes research worldwide.
The Web site includes a newsletter, pen pal connections for kids and information
on fund-raising and research.
- The Search for Diabetes in Youth - www.searchfordiabetes.org - Offers diabetic
kids under age 20 the chance to participate in a six-year study seeking to
determine how many kids have each diabetes type, and to investigate complications
and treatment.
- The TODAY Study - www.todaystudy.org - TODAY (Treatment Options for type 2
Diabetes in Adolescents and Youth) is a nationwide study seeking the best treatment
options for kids with type 2 diabetes. The site offers links to study sites,
and an opportunity to participate in the research.
Books
- "The Challenge of Childhood
Diabetes", by Laura Plunkett and Linda Weltner,
iUniverse, 2006. A mother and grandmother team up to write about their family's
experience living with a diabetic child.
- "Staying Healthy with
Diabetes: Nutrition & Meal Planning", by Amy P. Campbell,
M.S., R.D., Joslin Diabetes Center, 2006. Guides people with diabetes to
healthy food choices. For ordering information, check out https://store.joslin.org
, or call 800-344-4501.